Psalm 121:1-2, 5, 7-8 "I will lift up my eyes to the mountains; from whence shall my help come? My help comes from the Lord, who made heaven and earth. The Lord is your keeper; the Lord is your shade on your right hand. The Lord will protect you from all evil; He will keep your soul."Age: 28 months
Weight: 23 lbs. 10 oz.
Height: 31 in.
The Lord has truly been Timothy's protector for the past 28 months. We are especially grateful for his health the last 4 months.
We had a visit to the ENT last week. There are no current concerns with his hearing but we have a follow-up hearing test on May 2. He also scheduled Timothy for a
tonsilectomy on May 17. This is preparation for removal of the trach. Because his tonsils are SO HUGE (they measure 4+ on a scale of 1-4), there is concern that they are blocking much of his airway, so they need to come out to open up the airway in order to support better breathing. This is actually an answer to prayer. We have wanted to have them removed for some time because we feel it will enhance his breathing as well as his eating.
We continue to work on weaning him off the oxygen. After the tonsilectomy, this is the last thing that needs to happen in order to have the trach come out. We are now at a point where the doctor has given us permission to do something called
"sprinting". This means we take him
completely off oxygen at various times throughout the day for as long as he will tolerate it - usually 1-2 hours at a time right now. This is a HUGE STEP toward weaning him off completely!
He is now
sitting independently for several seconds and we are working on crawling and standing with the physical therapist. One of our biggest goals is that he would begin to bear more weight through his arms and legs.
Praise - His health has been wonderful
- his lungs are healing well
- he is becoming stronger, developmentally speaking
- he loves to play and interact with familiar people
Prayer - that he would remain healthy for this next month leading up to the surgery
- that his motor development would continue at a rapid pace
- that he would tolerate sprinting off the oxygen for longer periods of time without detriment to his lungs
Be sure to check out the new pics on Webshots - see link